Community of Action Report: The Digitally Empowered Patient

A digitally empowered patient uses technology to take an active role in effectively managing and advocating for their health and care. While the healthcare sector has yet to fully adapt to the digital world, patients’ desire for access to digital health information and services is palpable. To this end, the Digitally Empowered Patient Community of Action was created to meet the following objectives:

  • Identify programs and approaches that are breaking through the barriers to change
  • Incent change by providing actionable advice for patients, providers, and all other stakeholders

We engaged patients, healthcare providers, system leaders and vendors across Canada to gain a diverse perspective on the barriers to widespread access and adoption of digital health tools and services. We supplemented these interviews with a literature and marketplace review, a conference presentation, and a web-based survey, and summarized our findings into five themes.

People are saying

“Required reading for all health system leaders – Digitally empowering our patients should be table stakes. Period. Mike drop.”
– Lydia Lee, KPMG Canada – Partner, National CIO Advisory and Digital Health Lead

“Great resource and important work … Authentic engagement is close at hand.”
– Craig Lindsay, Programs Coordinator at The Kidney Foundation of Canada

“Worth reading, advancing the conversation!”
– Patrick Clifford, Director of Research and Innovation, Southlake Regional Health Centre

The working group

  • Emily O’Sullivan, Senior Manager, KPMG and Team Lead
  • Emily Hogan, Senior Consultant, KPMG
  • Victoria Wiebe, Consultant, KPMG
  • Andre Kushniruk, Lived Experience Member and Director, School of Health Information Science, University of Victoria
  • Lydia Sequeira, Doctoral Researcher, IHPME, University of Toronto/ Centre for Addiction and Mental Health
  • Darcy MacLean, Director, Product Management, Think Research
  • Tommaso D’Ovidio, Product Manager, Think Research
  • Felicia Ulloa, VP, Client Success, Think Research
  • Pat Clifford, Director of Research and Innovation, Southlake Regional Health Centre
  • Ajanthiy Thayalan, Student, McMaster University
  • Kunal Parikh, Student, Algonquin College

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